John, now I'm taking a personal interest in this too and will do alot of research on Tuberous Sclerosis.
Just maintain a positive fighting attitude my friend! We are all supporting you in our thoughts and prayers. Let your family know about us so they too can feel the support and concern from your other (FGF) family.
'68 428 HO M3 Monster, 4-on-the-floor! Need I say more?